Dementia as a Chronic Condition

Posted on April 06, 2016 by Anne Ellett

I am consulting with a lovely Assisted Living community that is looking to update their Memory Care program. As I talk with their team, they tell me the stories of the families that tour and move in their loved ones. The Administrator seemed frustrated as she was telling me about the most recent resident to move in. She said he had recently gone through so much trauma! In the past year, he had lived in 2 different Assisted Living locations, and had also been in a hospital and skilled nursing facility and most recently, his wife called 2 days before he was getting ready to be discharged from the nursing home looking to relocate him again!
“Why can’t they make a plan? It seems like they only call when they’re in crisis!” the Memory Care Administrator expressed.
This story is not untypical as families with dementia are often left without guidance on how to put together a plan, reacting and making decisions only in a time of crises. Dementia is a long-term chronic condition that a person may live with for well over a decade. And unlike other chronic conditions, such as heart failure, COPD, or hypertension, there are not multiple choices of treatments and therapies the medical team can recommend to help manage the condition and improve quality of life for a lengthy period of time. It is up to the person affected and their family members to piece together a plan. So often, families don’t know where to start!
Consumers, meaning the person living with the dementia and their family members, may be unknowledgeable about what constitutes good care, what type of support may be needed, and where are the professionals who can assist them? And there is no single template of care that will benefit everyone – every person living with dementia has individual abilities, interests, and resources.
If we look at dementia as a long term condition, it makes sense to educate ourselves and make a plan, in order to avoid, as much as possible, reaction during time of crises. If decisions are made during crises, there will be less time for thoughtful choices and less choices to select from. And any crises, such as a hospitalization or relocation to a new place of care can be traumatic, requiring reorientation and readjustment. The only way to stay in control is to educate yourself and make plans.
If you or a loved one are affected by dementia, contact Memory Care Support for assistance in putting together a personalized plan of care to provide enjoyment, choice and dignity.

If you work in Assisted Living and want
To make your dementia care program even better,
Or if you need assistance in
Planning care for a loved one,
E-mail or call me for a free consultation

Have a great day!

Anne Ellett, N.P., M.S.N.
AEllett@MemoryCareSupport.com                                                                                           
949 933-6201

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